Patient Support Managers do not provide medical advice. For medical advice or treatment-related questions, please talk to your healthcare team.
I’m grateful for the opportunity to make a direct impact on the lives of patients—helping them access the care they deserve while offering a compassionate ear as they face both emotional and physical challenges.
Farida
What is your dream vacation destination?
The Maldives
What’s a skill you’ve always wanted to learn?
How to play piano
What’s the most invigorating part of your day?
Waking up in the morning and drinking a cup of hot tea (I’m really into herbal teas now).
It’s rewarding to be able to help someone through challenges and provide them with tools to navigate their treatment journey.
Lana
Which unusual animal do you wish you could have as a pet?
Puma
What is your dream vacation destination?
Spain
What’s a skill you’ve always wanted to learn?
How to play any musical instrument.
The most rewarding part of my role is seeing my patients’ positive results—overcoming symptoms and achieving their personal goals when getting on therapy.
Kevin
What is a movie you could watch every day?
Toy Story
What is your dream vacation destination?
Korea and Japan
Which unusual animal do you wish you could have as a pet?
Panda
I ensure patients feel empowered throughout their health journey by teaching them how to advocate for themselves with their clinical team and helping them to build a wealth of knowledge pertaining to their disease.
Tess
What is a movie you could watch every day?
How to Lose a Guy in 10 Days
What’s a skill you’ve always wanted to learn?
Sign language
What’s the most invigorating part of your day?
Morning walk with my son and dog.
The average patient does not have the time to be calling their doctor’s office and insurance to appeal a difficult prior authorization denial. I’m happy to step into that role and help our patients navigate access issues.
Gabrielle
What is your dream vacation destination?
Hong Kong
Which unusual animal do you wish you could have as a pet?
Panda or Raccoon
What’s the most invigorating part of your day?
The ability to connect with patients and support them in any way I can.
It’s incredibly fulfilling to know that patients and caregivers can rely on me when they need support. The trust and connections I’ve built with patients have made me more empathetic and resourceful.
Stephanie
What is a movie you could watch every day?
Entrapment
What is your dream vacation destination?
Thailand
Which unusual animal do you wish you could have as a pet?
Monkey
I’ve lived through similar struggles that countless patients and caregivers face when dealing with a rare diagnosis. These experiences have given me the tools and compassion to be the best advocate for my patients and their families.
Meghan
What’s a skill you’ve always wanted to learn?
How to make my own homemade pasta!
What professional milestone are you most proud of?
Making the leap from hospital-based research nursing to the pharmaceutical/biotech industry.
What is a movie you could watch every day?
A Few Good Men
Getting patients started can be difficult, especially when navigating insurance. My patients motivate me to work tirelessly to get them onto therapy.
Natalie
What is your dream vacation destination?
Amalfi Coast, Italy
Which unusual animal do you wish you could have as a pet?
Capybara
What’s a skill you’ve always wanted to learn?
Drifting
What is PYRUKYND?
PYRUKYND is a prescription medicine used to treat low red blood cell counts caused by the early breakdown of red blood cells (hemolytic anemia) in adults with pyruvate kinase (PK) deficiency.
It is not known if PYRUKYND is safe and effective in children.
IMPORTANT SAFETY INFORMATION
PYRUKYND may cause serious side effects, including:
Rapid breakdown of red blood cells (acute hemolysis) has happened after suddenly interrupting or stopping treatment with PYRUKYND. You should not suddenly stop taking PYRUKYND. If you have to stop your treatment with PYRUKYND, your healthcare provider should monitor you closely. Tell your healthcare provider right away if you develop any signs or symptoms of breakdown of red blood cells including yellowing of your skin or the whites of your eyes (jaundice), dark colored urine, dizziness, confusion, feeling tired, or shortness of breath
- Liver injury has happened in people with another condition during the first 6 months of treatment with PYRUKYND when given at a dose higher than recommended for people with PK deficiency. Your healthcare provider will do blood tests to check your liver before you start treatment with PYRUKYND, monthly for the first 6 months of treatment, and as needed. Your healthcare provider may temporarily or permanently stop your treatment with PYRUKYND if you have abnormal liver tests. Tell your healthcare provider right away if you develop any signs or symptoms of liver problems including yellowing of your skin or the whites of your eyes (jaundice), nausea, dark colored urine, vomiting, pain in the upper right side of your stomach area or loss of appetite
The most common side effects of PYRUKYND were decrease in reproductive hormone (estrone) in men, increased salt from uric acid (urate) blood test, back pain, decrease in reproductive hormone (estradiol) in men, and joint pain (arthralgia).
These are not all the possible side effects of PYRUKYND. Call your healthcare provider for medical advice about side effects. You may report side effects to the FDA at 1-800-FDA-1088 or www.fda.gov/medwatch.
Before taking PYRUKYND, tell your healthcare provider about all of your medical conditions, including if you:
have liver problems
are pregnant or plan to become pregnant. It is not known if PYRUKYND will harm your unborn baby. Tell your healthcare provider right away if you become pregnant or think that you are pregnant during treatment with PYRUKYND
are breastfeeding or plan to breastfeed. It is not known if PYRUKYND passes into your breast milk. Talk to your healthcare provider about the best way to feed your baby during treatment with PYRUKYND
Tell your healthcare provider about all the medicines that you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. PYRUKYND and certain other medicines may affect each other causing side effects. PYRUKYND may affect the way other medicines work, and other medicines may affect how PYRUKYND works. Know the medicines you take. Keep a list of them to show your healthcare provider or pharmacist when you get a new medicine.
Please see full Prescribing Information, including Patient Information.
What is PYRUKYND?
PYRUKYND is a prescription medicine used to treat low red blood cell counts caused by the early breakdown of red blood cells (hemolytic anemia) in adults with pyruvate kinase (PK) deficiency.
It is not known if PYRUKYND is safe and effective in children.
IMPORTANT SAFETY INFORMATION
PYRUKYND may cause serious side effects, including:
Rapid breakdown of red blood cells (acute hemolysis) has happened after suddenly interrupting or stopping treatment with PYRUKYND. You should not suddenly stop taking PYRUKYND. If you have to stop your treatment with PYRUKYND, your healthcare provider should monitor you closely. Tell your healthcare provider right away if you develop any signs or symptoms of breakdown of red blood cells including yellowing of your skin or the whites of your eyes (jaundice), dark colored urine, dizziness, confusion, feeling tired, or shortness of breath
- Liver injury has happened in people with another condition during the first 6 months of treatment with PYRUKYND when given at a dose higher than recommended for people with PK deficiency. Your healthcare provider will do blood tests to check your liver before you start treatment with PYRUKYND, monthly for the first 6 months of treatment, and as needed. Your healthcare provider may temporarily or permanently stop your treatment with PYRUKYND if you have abnormal liver tests. Tell your healthcare provider right away if you develop any signs or symptoms of liver problems including yellowing of your skin or the whites of your eyes (jaundice), nausea, dark colored urine, vomiting, pain in the upper right side of your stomach area or loss of appetite
The most common side effects of PYRUKYND were decrease in reproductive hormone (estrone) in men, increased salt from uric acid (urate) blood test, back pain, decrease in reproductive hormone (estradiol) in men, and joint pain (arthralgia).
These are not all the possible side effects of PYRUKYND. Call your healthcare provider for medical advice about side effects. You may report side effects to the FDA at 1-800-FDA-1088 or www.fda.gov/medwatch.
Before taking PYRUKYND, tell your healthcare provider about all of your medical conditions, including if you:
have liver problems
are pregnant or plan to become pregnant. It is not known if PYRUKYND will harm your unborn baby. Tell your healthcare provider right away if you become pregnant or think that you are pregnant during treatment with PYRUKYND
are breastfeeding or plan to breastfeed. It is not known if PYRUKYND passes into your breast milk. Talk to your healthcare provider about the best way to feed your baby during treatment with PYRUKYND
Tell your healthcare provider about all the medicines that you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. PYRUKYND and certain other medicines may affect each other causing side effects. PYRUKYND may affect the way other medicines work, and other medicines may affect how PYRUKYND works. Know the medicines you take. Keep a list of them to show your healthcare provider or pharmacist when you get a new medicine.
Please see full Prescribing Information, including Patient Information.